Eureka Alert

PHOENIX, Ariz. — Sept. 18, 2018 — As part of a national initiative to solve children’s diseases, the Translational Genomics Research Institute (TGen) and the Pacific Pediatric Neuro-Oncology Consortium (PNOC) are participating in the launch of the Kids First Data Resource Portal, which is supported by the National Institutes of Health (NIH).

The portal is designed to accelerate ways to better diagnosis, monitor and treat diverse types of pediatric diseases, including childhood cancers, by giving scientists and physicians an easy way to access large-scale genomic and clinical datasets.

In addition to NIH-funded pediatric cancer datasets, TGen and PNOC are leading the way for access to clinical trial genomics data by partnering with the Children’s Brain Tumor Tissue Consortium (CBTTC), an organization leading the launch of a Pediatric Brain Tumor Atlas initiative announced today as part of the Kids First portal launch.

The portal includes secure access to clinical trial genomic sequencing data shared by TGen and PNOC about children with DIPG (diffuse intrinsic pontine glioma), a type of inoperable brain cancer that forms deep within the brain stem in an area known as the pons. Currently, there are no effective treatments for this aggressive cancer, which most commonly strikes


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